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KDBSL8Y
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| Joined: | Sun Apr 5th, 2009 |
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| Posts: | 74 |
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Posted: Wed Jul 8th, 2009 11:49 am |
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| OMG!!!! These F----- doctors are nuts!!!! I sure wouldn't want a PS looking at my playpen. He might want to change my sex! LOL I sure don't want to be a man after all these years. LOL She needs to be checked out and needs to find out what kind of cancer it is. A plastic surgeon has no business being inside the playpen. That is why they have OB/GYNs. Please make sure that she finds out what type she has. It is very important. My sis had exactly what I asked you about. If they had not caught it in time, she would have had to go to a PS to repair the damage. I certainly would get a second and third opinion. HPV and the cancer that goes along with it is nothing to mess around with. My sis had a hysterectomy many years ago and still becoame ill with vulvarian cancer. Everytime I go to the dr. they want to know why I am getting a pap smear and I have to tell them what they haven't already learned. Please make sure she gets the help she needs. Hugs and kisses and you and yours are in my prayers.
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Thedesigndiva
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Posted: Tue Jul 7th, 2009 06:27 pm |
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KDBSL8Y wrote: Diva,
I am so sorry to hear about your sis. My sis also had vulvarian cancer and also had BCBS. Dr. Hussein was her primary OB/GYN and sent her to Jackson in Miami. At the present time I am waiting for a call from my sis to get the name of Dr. who performed her surgery. I can say that I know how you feel because I have been there and done that. As soon as my sis calls me back with all the info I will definetly let you know all that I can. Hugs and kisses. Sis called and the name is Sylvester University of Miami hospital and clinic and the doc's name is Hervy E. Averette. The number is 305-243-4943. There is an 800 number for Sylvester Gynocological Oncology and it is 800-548-4000. Or 305-585-5180. The address is 1611 NW 12th Ave in Miami. Last we heard he still takes BCBS. Call and find out if she needs a referral or if she can make the appt. and come down to see him. Good luck and our prayers are with you. If you need anything else, please don't hesitate to PM me.
Sincerely,
Cheryl
Thanks bunches....I just heard from my sister and her -----you're gonna love this-----PLASTIC SURGEON says that she doesn't need to go to a gyn for this...that he can remove it for her !!! OMG....is this guy an idiot or what.. I kinda read my sister the riot act an told her to so what he GYN told her to do... I know I sure wouldn't want a PS to be cutting into my "playground"....LOL
I have forwarded to her this info you just posted , so hopefully she will follow this advice and do the right thing !!!!
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KDBSL8Y
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Posted: Tue Jul 7th, 2009 06:18 pm |
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Diva,
I am so sorry to hear about your sis. My sis also had vulvarian cancer and also had BCBS. Dr. Hussein was her primary OB/GYN and sent her to Jackson in Miami. At the present time I am waiting for a call from my sis to get the name of Dr. who performed her surgery. I can say that I know how you feel because I have been there and done that. As soon as my sis calls me back with all the info I will definetly let you know all that I can. Hugs and kisses. Sis called and the name is Sylvester University of Miami hospital and clinic and the doc's name is Hervy E. Averette. The number is 305-243-4943. There is an 800 number for Sylvester Gynocological Oncology and it is 800-548-4000. Or 305-585-5180. The address is 1611 NW 12th Ave in Miami. Last we heard he still takes BCBS. Call and find out if she needs a referral or if she can make the appt. and come down to see him. Good luck and our prayers are with you. If you need anything else, please don't hesitate to PM me. Is it insitu multiple layers squamus cell and was it caused from the HPV virus? These are the things that need too be known. If you need anything don't hesitate to get in touch with me.
Sincerely,
Cheryl
Last edited on Tue Jul 7th, 2009 06:26 pm by KDBSL8Y
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Thedesigndiva
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Posted: Tue Jul 7th, 2009 06:04 pm |
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huntrdream wrote: The hair thing is what I freaked about at first, I waited and waited and nothing fell out. I told the Dr. he was a liar! Infact at the start of Chemo my hair was growing really fast. Well after about the 4th one, well he did not lie!!!! I went out to my kennel and shaved it totally off. My little boy also had this head shaved as he say's it was support for me!!! I was so vain at the start I bought thousands of dollars of wigs, which I wore a very short time. Doo rags from Walmart became my choice of head gear. The thought of bald was really worst than being bald. Now when the eyelashes came out that was a totally different story!!! LOL
I
 So HAPPY to read that you survived !!!! I am leading my sister thru the process and reminding her that PEASE woman are survivors !!!!! It will be TWENTY YEARS this coming August that I had my cervical cancer surgery ( 14 hours ) and I am still here kicking butt and taking names !!!  Hopefully that will give her hope !!!!!
Diva 
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huntrdream
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Posted: Tue Jul 7th, 2009 05:58 pm |
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The hair thing is what I freaked about at first, I waited and waited and nothing fell out. I told the Dr. he was a liar! Infact at the start of Chemo my hair was growing really fast. Well after about the 4th one, well he did not lie!!!! I went out to my kennel and shaved it totally off. My little boy also had this head shaved as he say's it was support for me!!! I was so vain at the start I bought thousands of dollars of wigs, which I wore a very short time. Doo rags from Walmart became my choice of head gear. The thought of bald was really worst than being bald. Now when the eyelashes came out that was a totally different story!!! LOL
I
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Thedesigndiva
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Posted: Tue Jul 7th, 2009 05:45 pm |
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huntrdream wrote: My very best thoughts will be with you both, Cancer is a nasty thing. I used and am still using Dr. Worthheim, they are a large practice and have 3 or 4 locations on the coast. If you need any numbers just pm me and I will be most glad to help as much as I can. I also have wigs if needed!
Thank you so much...I do believe she has contacted that woman gyn in Jupiter for an appointment. We are hoping that she won't need chemo and wigs HAHAHAHA...If you knew my sis she would FREAK if she had to lose her hair !!! BUT in the event she would, I ,being the GOOD sister that I am , I would probably shave my head in support...Can't you see it now..Diva BALD !!! OMG...no more red glitter hair..
Diva
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huntrdream
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Posted: Tue Jul 7th, 2009 05:40 pm |
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| My very best thoughts will be with you both, Cancer is a nasty thing. I used and am still using Dr. Worthheim, they are a large practice and have 3 or 4 locations on the coast. If you need any numbers just pm me and I will be most glad to help as much as I can. I also have wigs if needed!
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Thedesigndiva
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Posted: Tue Jul 7th, 2009 04:22 pm |
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 UPDATE.... further testing and biopsy shows that it is the dreaded C word...........Results came in on Friday and she was informed by the Doctor yesterday when she went in for her visit. She now has to go to an oncologist and they will do whatever needs to be done.. What really pisses her off , is that the oringinal dr she went to see for her first biopsy led her to believe that it wasn't any big deal and not to worry about ....The next dr she went to see in Stuart , cut more into the dermas and sent that out for testing and came back with a more accurate diagnosis......Just add her to your prayer list and pray that all turns out well for her and THANKS BUNCHES to all my forum supporters........
Hugs and Peace
Diva
Last edited on Tue Jul 7th, 2009 04:23 pm by Thedesigndiva
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sewnfool
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Posted: Mon Jun 29th, 2009 03:39 pm |
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smm wrote: Diva,
I had cervical cancer, young at age 20, and went to Dr. Goodman in Palm Beach..He is affiliated (cant spell that with Good Sam. That was where he did my surgeries and my appointments were on Flager Dr., right next door. That was a LONNNGG time ago and my memory is not what it used to be..BUT, he was kind, compassionate, returned all my mothers hysterical phone calls (her "baby" was sick and as a momma now myself, i understand her wanting to speak directly to him, answered all questions, went over every single detail..Also, my aunt passed away from complications from ovarian cancer (we will NEVER say that this horrible cancer killed her..she beat it just like she said she would the 4 years before her death when she found out!!) she went to Moffitt. They were great..My mom, her sister, went to stay with her, she could stay there for treatments that she needed to not travel for or even if she didn't feel well..So, MYYY vote is Goodman if it is not complicated but Moffitt if it is a stage 4 like my aunts was when she found out..
Hopes this helps..I have been reading this for YEARSSS, and years.. Only responded to one post on RC during the time of his death...Always kept up with you Diva, you always seem to bring a calmness to the room. I swear that I am going to come and see you at 5 guys
Diva - I have been a patient with Dr Goodman - nor for cancer but for issue where he was consulted by my Dr - Gene Manko - I saw him several times. he is all of the above - warm, friendly, and compassionate - I would see him again if I needed a specialist in this area of expertise. We do have some very good doctors - your sister should be able to find a practitioner to treat her.
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sewnfool
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Posted: Mon Jun 29th, 2009 03:39 pm |
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smm wrote: Diva,
I had cervical cancer, young at age 20, and went to Dr. Goodman in Palm Beach..He is affiliated (cant spell that with Good Sam. That was where he did my surgeries and my appointments were on Flager Dr., right next door. That was a LONNNGG time ago and my memory is not what it used to be..BUT, he was kind, compassionate, returned all my mothers hysterical phone calls (her "baby" was sick and as a momma now myself, i understand her wanting to speak directly to him, answered all questions, went over every single detail..Also, my aunt passed away from complications from ovarian cancer (we will NEVER say that this horrible cancer killed her..she beat it just like she said she would the 4 years before her death when she found out!!) she went to Moffitt. They were great..My mom, her sister, went to stay with her, she could stay there for treatments that she needed to not travel for or even if she didn't feel well..So, MYYY vote is Goodman if it is not complicated but Moffitt if it is a stage 4 like my aunts was when she found out..
Hopes this helps..I have been reading this for YEARSSS, and years.. Only responded to one post on RC during the time of his death...Always kept up with you Diva, you always seem to bring a calmness to the room. I swear that I am going to come and see you at 5 guys
DOUBLE POST - not sure why... sorryLast edited on Mon Jun 29th, 2009 03:41 pm by sewnfool
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Thedesigndiva
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Posted: Tue Jun 23rd, 2009 12:42 pm |
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UPDATE.... First of all I can't believe i am even UP at this hour of the a.m. BUT the rain and thunder has awoken me really early today....
SECOND... I can't THANK all of you so much for your timely replies. It warms my heart to know that we still have caring folks here in chobee !!!
My sister has an appointment with a GYN in Stuart Wed for another biopsy. She will then really know what's going on.
I also found out the real reason why her Gyn in Winter Haven ,Fl wont be of assistance to her...Are ya ready for this ??? The Dr says that because my sister pointed this growth out during her exam that the insurance wouldn't pay for it.
The Dr would have to have discovered it during the exam SAY WHAT ??? Isn't that the reason we go to drs ?? Cause we found something somewhere that doesnt belong there ?? Has the whole world GONE MAD !!!!! 
That Dr in WInter Haven is REAL LUCKY that Diva wasnt in the room with my sister..... She would not have any butt cheeks to take home that night !!!!
So , again THANK YOU for all your lovely and kind comments !!!
I will let you all know what happens tomorrow... I know she will be fine !!! As she says Her God will not let her down... and I also told her that her God doesn't want her there screwing with the process !! Ah !! Laughter ....the best medicine....
Hugs to All
Diva
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lkclassic1
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Posted: Tue Jun 23rd, 2009 06:42 am |
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| i worked for dr hussain and she would send he patients to jackson memorial in situations like this so try that
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smm
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Posted: Tue Jun 23rd, 2009 06:10 am |
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Diva,
I had cervical cancer, young at age 20, and went to Dr. Goodman in Palm Beach..He is affiliated (cant spell that with Good Sam. That was where he did my surgeries and my appointments were on Flager Dr., right next door. That was a LONNNGG time ago and my memory is not what it used to be..BUT, he was kind, compassionate, returned all my mothers hysterical phone calls (her "baby" was sick and as a momma now myself, i understand her wanting to speak directly to him, answered all questions, went over every single detail..Also, my aunt passed away from complications from ovarian cancer (we will NEVER say that this horrible cancer killed her..she beat it just like she said she would the 4 years before her death when she found out!!) she went to Moffitt. They were great..My mom, her sister, went to stay with her, she could stay there for treatments that she needed to not travel for or even if she didn't feel well..So, MYYY vote is Goodman if it is not complicated but Moffitt if it is a stage 4 like my aunts was when she found out..
Hopes this helps..I have been reading this for YEARSSS, and years.. Only responded to one post on RC during the time of his death...Always kept up with you Diva, you always seem to bring a calmness to the room. I swear that I am going to come and see you at 5 guys
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okeemommy2009
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Posted: Tue Jun 23rd, 2009 04:16 am |
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| I have been battling this kind of thing off and on for years. The best Dr. I dealt with is Dr. Howard Goodman in WPB on Flagler Dr. He was very good with me! I wish your friend much luck, and tell her God will watch over her.
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OkeeNarnie
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Posted: Mon Jun 22nd, 2009 02:11 pm |
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Diva, Moffitt has my vote as well.
They took very good care of my Mom.
Their cancer research department is awesome.
http://www.moffitt.org/
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flsr
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Posted: Mon Jun 22nd, 2009 11:05 am |
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| About BC/BS not covering cancer--is it true that with most insurance policies you have to have a special "rider" to cover cancer? I believe I have heard this, and the reason would probably be that treatments are so expensive.
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CitizenGC
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Posted: Mon Jun 22nd, 2009 04:34 am |
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| Don't know about a Dr. but she will be added to the prayer list.
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Firefly1958
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Posted: Mon Jun 22nd, 2009 04:05 am |
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Last edited on Mon Jul 27th, 2009 02:39 pm by Firefly1958
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chobeefan
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Posted: Mon Jun 22nd, 2009 03:06 am |
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| Try Dr. Garcia Diva... her office is at the end of NE 19th Lane... which is where all the Doctor offices are.
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Miss Kitty
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Posted: Mon Jun 22nd, 2009 02:13 am |
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Thedesigndiva wrote: Good day All.........
have just recieved a very disturbing call from my baby sister.. She more than likely has vulvar cancer and we are trying to locate a gyn oncologist that takes Blue Cross Blue Shield.. I am praying that with all the woman who post here MAY know of someone and help us out !!!!
I, myself am a 20 year cervical cancer survivor ( August 1989 ) and she of course is scared , she's not quite as TOUGH as the Diva is.....
So , please keep her in your prayers and let me know if anyone knows anyone who can help
Love to All
Hugs
Diva
Diva I don't know of a Dr .But I sure will pray she fines one. I will have prayer for her at church , if it is ok with you and your sister. I went to Dr Bradfield to have a hysterectomy. Who does she go to,is it someone in town. My vote is for Moffitt also in TampaLast edited on Tue Jun 23rd, 2009 06:03 am by Miss Kitty
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sportsnut
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Posted: Mon Jun 22nd, 2009 01:41 am |
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| Moffitt definitely gets my vote. Long drive to Tampa worth EVERY penny!
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OkeeBird
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Posted: Mon Jun 22nd, 2009 01:40 am |
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| Jupiter, FL Dr. Donna Penneli Not sure of the spelling she is an OB/GYN an Oncologist also. Last edited on Mon Jun 22nd, 2009 01:43 am by OkeeBird
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laser
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Posted: Mon Jun 22nd, 2009 12:03 am |
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I don't know if she is still practicing here but I went to Dr. Hussain when I had cervical cancer. Of course that was ten years ago. I didn't have insurance and she worked with me. For my first follow up visit I didn't show up because I just didn't have the money. She called and told me she would do it for free as long as I showed up. She was the one doctor who was more worried about my health than the money!! Like I said though, I don't know if she is still here.
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Firefly1958
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Posted: Sun Jun 21st, 2009 10:16 pm |
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Last edited on Mon Jul 27th, 2009 02:39 pm by Firefly1958
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Thedesigndiva
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Posted: Sun Jun 21st, 2009 09:27 pm |
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flsr wrote: Diva, does your sister have to stay in a certain locality? Maybe a Cancer Treatment Center of America would be a good choice.
She has contacted them and they do not accept BCBS.....She cant afford out of pocket....
Diva
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Cuckoo
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Posted: Sun Jun 21st, 2009 09:07 pm |
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| Dr. Bradfield... Don't ask how I know but if you need more info our number is in IM... Then again maybe I'm wrong... You may be looking for something other than whom I speak of... Last edited on Sun Jun 21st, 2009 09:14 pm by Cuckoo
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flsr
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Posted: Sun Jun 21st, 2009 09:06 pm |
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| Diva, does your sister have to stay in a certain locality? Maybe a Cancer Treatment Center of America would be a good choice.
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Mitch3
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Posted: Sun Jun 21st, 2009 08:59 pm |
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Diva,
I don't know of anyone personally...........but can't she go on line (BC/BS) and look up doctors in the area of speciality that she wants? Thats what I do, and then I research the heck out of a doctor I pick.
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Thedesigndiva
Member
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Posted: Sun Jun 21st, 2009 07:47 pm |
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Good day All.........
have just recieved a very disturbing call from my baby sister.. She more than likely has vulvar cancer and we are trying to locate a gyn oncologist that takes Blue Cross Blue Shield.. I am praying that with all the woman who post here MAY know of someone and help us out !!!!
I, myself am a 20 year cervical cancer survivor ( August 1989 ) and she of course is scared , she's not quite as TOUGH as the Diva is.....
So , please keep her in your prayers and let me know if anyone knows anyone who can help
Love to All
Hugs
Diva
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